July 25, 2013

cystematic, super fantastic

{ In case you got donuts instead of going to Biology as much as I did in high school }

I went to the doctor on Monday to meet my new primary care team and to follow up on the follow-up to my surgery I had in February, when I found out that my cysts are back. Not only had they come back, but at the time, they were already 3/4 of the size they were when I had them removed. Without doing another biopsy/surgery, there isn't really a way to tell what they could be made of (filled with) but from the ultrasound, they appeared slightly more "simple" or clear fluid instead of blood... 
(...are you still there?)
The doctor decided the easiest solution could be putting me on a low dose birth control pill that could potentially shrink their size and prevent cyst formation. At that point I had avoided the pill for over two years, after being on Yaz (the one that's constantly being sued on TV) and developing a heart arrhythmia and blacking out in public, twice. I have also been weary of any hormone manipulating drugs because of the history of cancer in my immediate and extended family and for me, anything that makes your body think it's doing something it isn't, spells t-r-o-u-b-l-e. With that said, I decided to give the pills a try for a few months to see if there were any noticeable changes in how I felt day-to-day and to the cysts, since the alternative was another surgery. Percocet, enemas, diapers- oh my!!
 Tempting, but for my ovaries' and my husband's sake, I'll say no thank you.
It has been three months since I started taking the pill again and overall I haven't noticed any remarkable changes but instead I am more aware of how confused my body is because of changes in my cycle and digestive health. It seems like you can never treat one thing without opening up a can of worms of other ailments. My new doctor and I decided on Monday that before I continue with any sort of pill, I will have another ultrasound and series of blood tests done to see if they can determine what the cysts could be and how they are forming.
If the cysts are more complex, like the ones I had removed, it would likely mean another surgery as they will not go away on their own (like simple cysts typically do). The risk of letting them get too large is that the cysts will stretch the walls of the ovaries to the point that the tissue could tear or be completely consumed and the only way to remove them would be to remove the ovary entirely. If only one of mine had this issue I would consider removing it early on, but since both do, the doctors want to do everything possible to make sure they do not get permanently damaged. The thing that baffles me is that some women will live with cysts 2 or 3 times the size mine were and never notice anything until they attempt to get pregnant or go through menopause, and yet I can physically feel the strain they are putting on my lower body on a daily basis.  
So the next step is some blood work (they're also doing dietary testing and mentioned celiac disease- a severe gluten intolerance, boo.) to rule out any external causes and an ultrasound (not the jelly-on-the-belly kind, neither) to see if the cysts have shrunk (shrank? shrinked? ah, shrit.) at all. 
I'll keep you posted. Kiss your ovaries for me. 

1 comment:

  1. Oh my gee, I am right there with you. I hope you find answers to your questions and relief from your daily struggles.



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